March 2012
48 posts
Moved rooms.
It’s bigger and there isn’t someone screaming at all hours “Help me” …. much better :)
TLC Cystic Fibrosis Special. Don't forget to... →
February 2012
97 posts
Anonymous asked: If you don't mind my asking, what is your PFT percentage?
YES
I can get my PICC line tonight instead of an IV. Woo! But still kinda meh. But better
Going into the hospital.... Again -_____-
4 tags
A night in the life
I woke up at 12:30 last night and coughed up straight blood for ten minutes
I woke up every hour on the hour to continue to do so.
Felt lightheaded at 4 got apple juice
Continued to wake up every hour until my alarm went off at 7.
Worst stomach ache of my life.
I know I am complaining…. but it’s just so damn unfair. Why can I not just breathe and live life like a normal human...
1 tag
So I just read this article about these parents...
This. Pisses me off.
What? I can't hear you over the sound of my...
This pretty much sums it up right now :)
4 tags
CF update
Well, after getting out of the hospital, I decided if I wanted to stay healthy I was going to have to actually do my meds…. So I became very adamant about getting all of them done. Doing all my nebulizers and taking the antibiotics and taking all my sinus rinse blah blah blah. Well two days I started coughing up blood and having nose bleeds. They told me to stop doing everything but my...
Why have I not realized til now how much I like...
Almost threw up....
Guess I am staying home again. Also guess this means more Lizzie McGuire or High school musical marathon. I do have to go to work tomorrow though. I will try….
What do you guys think, High school musical or Lizzie McGuire?